My beautiful little nephew Max was born with Prader-Willi syndrome.
If you had not heard of this syndrome, it shows there is a need to raise awareness of it. PWSA UK needs your support, so please visit the donation page I have set up if you would like to help to fund research into this genetic condition which affects 1 in every 20,000 people worldwide.
By strapping their logo to our bikes, we hope to open dialogue as we travel.
Thank you for your support.
Hi Max, I have just seen you r online fundraising page - thank you so much! What a fantastic challenge, and so kind of you to think of us! It would be great to be able to keep in touch, would you email me your contact details? I can be contacted at spassmore@pwsa.co.uk, with very best wishes, Susan
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